Good morning @ruthiek519 Well, of all the gifts you could have gotten for your 72nd b-day, you’re wishing the diagnosis of PMF would have come with a gift exchange receipt, huh? Bad joke, I know. I’m 71 and can relate to getting news that wasn’t anticipated…and, having a doctor being less than helpful.

I’m happy you found Connect. Promise you won’t be alone here. ☺️ I’m posting a link for you with the search results for discussions with other members who have MF (PMF) so that you can pop into any conversation to ask questions or share your experiences.
Primary Myelofibrosis Search
https://connect.mayoclinic.org/search/?search=PMF
Your current hematologist sounds less than inspiring, so I’m glad to read that you’re seeking a 2nd opinion. It’s important to feel that your doctor is an integral part of your care team and not dismissive…just going through the motions.
While it is true that some blood cancers aren’t curable but often there are treatments which can help slow the progression of a disease. Sometimes they become more of a chronic condition we live with. MF doesn’t really have a definitive staging but has categories such as a low, intermediate, or high risk group to evaluate the type of treatment. So the first step is to determine your specific diagnosis.

Were you having symptoms that led to your diagnosis? What were the tests run to help confirm it? Did you have a bone marrow biopsy?