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Replies to "Hi @phillymom Mine was found because I had a wonderful primary porvider who continued to order..."
Hypertrophic Cardiomyopathy (HCM) | Last Active: 2 days ago | Replies (9)
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Hi @phillymom
Mine was found because I had a wonderful primary porvider who continued to order tests after I complained of many palpatations. ECG was abnormal (had an abnormal one 13 years prior and a stress test and the cardiologist was puzzled and just let it go.) so PP ordered a holter monitor and then an Echo, which is where they found it. A MRI was recommended and that confirmed it. When I started seeing a cardiologist at the HCM clinic at Mayo, he said it was there when I had first ECG and they missed it. You shouldn't need to be having symptoms for them to find it. Tests should do that.
Replies to "Hi @phillymom Mine was found because I had a wonderful primary porvider who continued to order..."
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So you suffered with it for 13 years! Not fair. I read that it's difficult to diagnose, but that's awful. Doctors seem to look at me in disbelief when I describe the shortness of breath, fatigue & chest pressure. A doctor in Urgent Care just told me most people who are in their 70s have these symptoms, and ''you are doing very well for your age". I told him I don't know one person with them, so if you're surrounded by people with those symptoms, they are not getting diagnosed any better than I am!
I'm scheduled for a follow up Echocardiogram. The last one was said to be "normal", as well as the ECG, and Holter Monitor. The stress test showed ''left ventricular insufficiency with normal filling pressures" and it is said that my pressures are adequate and do not meet the threshold of heart failure. Also the CT scan was '''normal". So if they still don't find it on Echo, then I will go to Northwestern in Chicago.