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Do you take midodrine?

Heart & Blood Health | Last Active: Aug 12 10:59pm | Replies (17)

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Profile picture for seniormed @seniormed

Just started midodrine for neurogenic OH.
I could use some advice myself. My PCP prescribed
5 mg three times a day. Cardiologist suggested taking
it before I get out of bed but pressure is low normal in the morning. At this time BP is widely variable with a sluggish heart rate response. I wear support stockings
and have plenty of fluids.I noticed a headache yesterday
and BP was 88/50 after I forgot my afternoon dose.
I’m learning to live with spikes and valleys and how I feel. Was surprised low reading was the cause of a headache.
Systolic of 140s does not alarm me. Do you have an accurate automatic monitor with pulse reading.?
Hope we get more input from experienced users.

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Replies to "Just started midodrine for neurogenic OH. I could use some advice myself. My PCP prescribed 5..."

Hi Seniormed....Yes, I have a BP cuff with monitor made by Greatergoods. I bought the AC adaptor, so don't need batteries. It's quite accurate as I've taken it in to my doctor's appointments a couple of times to compare with theirs.
I hope you took another dose of midodrine in the afternoon, when you forgot your dosage? How do you feel when your BP goes down to 88/50? Whenever mine goes down near or below 100 systolic I can feel it and don't want to do anything; even making my bed or fixing breakfast tires me out when it starts down. It takes 2-3 hours for midodrine to begin working for me; I know everyone is different, but this is one reason I am on this discussion group, to see if there are better, quicker, remedies. It seems that maybe Droxidopa that Lucy is taking might work, however, it is not prescribed for OH at this time and would need to be off-label. I'm a former athletic, 85 yo, and still believe exercise is the best thing we can do to live a longer, healthier life. Whenever I can get my BP around 140 systolic, or higher, I always feel better, and always have my best 1 mile power-walk times. But what drives me nuts is that it usually takes half the day to get my BP up high enough to power-walk or to just feel halfway normal! Sometimes, even with 10mg 3x/day my BP will not get high enough. Thanks for your input; you sound like a reasonable person. Keep in touch.