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mamsgirl1998 avatar

Essential Thrombocythemia: Making treatment decisions

Blood Cancers & Disorders | Last Active: Sep 13 11:13am | Replies (291)
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Hi....
Thanks for your response. I'm knew to this ET thingy. So, do you get monthly tests? My doc said to get tested every 3 months. Are you just on baby aspirin or...? And, when were you diagnosed?
I have so much to learn about this. It was scary at first to get the diagnosis (my doc was very positive, kind and informative), but the more I learn and read here I feeling I can actually live with this.

Happy Memorial Day to you, too.

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Replies to "Hi.... Thanks for your response. I'm knew to this ET thingy. So, do you get monthly..."
hippymo52 | @hippymo52 | May 24 1:36pm

I take a low dose aspirin and hydroxyurea 500mg once a day with no side effects. 🙏

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nohrt4me (Jean) | @nohrt4me | May 25 10:16am

I was diagnosed at age 60, but onset of high platelets about age 54. Just on baby aspirin x 3 years because no clots + CALR mutation = lower clot risk. Platelets gradually rose from 600s to near 800, and then started hydroxyurea once a day.

Now age 70 and doing ok with the ET. My dad also had ET. So feel free to ask questions here. Some of us have had this quite awhile and are part if the mysterious family clusters with ET.

Take good care of yourself. When I slack off, I am a trial to myself and others.

PS, I get blood tests every 3 months, but doc may want them more frequently if you start meds.

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