Anyone out there diagnosed with Pudendal Neuralgia?

My rectal pain started after a colorectal surgeon did an unneeded surgery. A simply Botox in sphincter to allow a supposed fissure heal. It left me in antagonizing pain. 24/7no way for relief. He wrote lies about me and I could not get a doctor or emergency room to help. I had the tests to show I never took opiates. If I could I would have. My medication doctor does urine test often an all patients. I have seen him for 9 years. It was also written in my med file I am bipolar. I have a letter stating I have never had anything but depression and anxiety from my pain and I am Celiac and have MTHFR. all has ruined my insides. Now the scar tissue he left doing what to my anal canal is growing and my anal canal is only 1/4 inch. The pain gets worse when I have to go potty. It is a hot knife stabbing inside me. My body has gone out of normal brain messages, called functional neurological disorder. No help for that. The network of nerves in the brain is sending the wrong messages. When the pain starts the body goes into shaking inside, arms and legs have lost ability to hold me up without help, my memory is gone and my speech is like a drunk disabled person. Ny life has been hell for 2.5 years. Doctors cannot fix the scar tissue, it causes the pain and that causes my body to go anything but balanced. I look a pathetic old lady, instead of the weight work and Pilates for 35 years. The 2 autoimmune diseases have caused my body to not be nourished. I just found out at 73 years how many problems I have in my body. I don’t see any future. My husband is not happy with my needs. I can move around in pain and off balance. I cannot go do anything but doctors offices who just send me to someone else. I don’t think I can live much longer. The colorectal doctor I saw says there is no surgery, medicines to help. I have been to Specialist PT but it causes pain. Then the doctors pull the therapy. I might try a stimulators implant, but the closure will still be there. One angry surgeon has killed me because with no evidence started to slowly cause my deterioration. He never did any lab tests. I never saw him before I went seeking help for constipation and general pelvic pain.

Is anyone experiencing chronic pelvic pain? I'm 2 years in and can't get anything to help with breakthrough pain. I take 1200mg of Neurontin three times a day... If makes me stutter and have tremors.... It manages 60% of the pain but the rest is still unbearable. I'm finally scheduled for an MRI on Monday... I'm hoping for some kind of miracle I guess!

I had the block and pain only got worse. Really struggling with life.

I’ve had great luck with Radio frequency ablation to the pudendal nerve, typically relief last about a year and a half for complete relief, and even after that the mild burning is nothing compared to before treatment

Hello,
I crushed the left branch of the Pudendal N. in 1995. It took 3 years for a diagnosis and until July of 2001 before I had Pudendal release surgery that finally gave me some relief. Dr Stanley Antolak, while he was on the Urology staff at the Mayo Clinic at that time was the surgeon. His office is in St. Paul, Minnesota, phone number is 763-229-2266. You will find a compassionate and one of the most knowledgeable physicians in the world about Pudendal Nerve injuries. There are many different treatments used now. Please feel free to contact me here or by private message to discuss the complexities of this terrible problem.
Darrell Burns

Hi, Darrell,

My son is suffering with this (for a year now). He is unable to do the things he used to love. He is miserable with this pain. He has had a nerve block and botox to the butt muscle that is most likely compressing the pudendal nerve. He has done pelvic floor physical therapy, and nothing is helping. Please give me any information you can towards getting him back to having a normal, productive life.