← Return to Waldenstrom macroglobulinemia (WM) 3 years: Might I be in remission?

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Profile picture for Lori, Volunteer Mentor @loribmt

Welcome @breathernow. Having a fatigue as your travel companion is a real drag…though there are plenty of opportunities to stop and smell the roses along the way. ☺️ I’ve been there myself, so I’m not making light of the situation. It really is a horrible feeling to be so drained of energy all the time. Unfortunately, blood conditons and fatigue usually go hand in hand.

Connect has several members with Waldenstrom macroglobulinemia (WM). I’ve done a quick search and found quite a few discussions that might be of interest for you. Here’s a link to the menu:
https://connect.mayoclinic.org/search/?search=WM
Are you currently in treatment for your WM?

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Replies to "Welcome @breathernow. Having a fatigue as your travel companion is a real drag…though there are plenty..."

Right now just monitoring Lgm levels through blood tests with VA - they suggest treatment when count reaches 5000-6000. Now around 2500.

Hi Lori, really do appreciate your feedback, you are first person to give me feedback, I am reaching out for first time with my diagnosis, although I was diagnosed 3yrs ago I am told that I have had waldenstrum for 10 yes now, no treatment yet, just being monitored. Mike