Primary Small Bowel NETS, Liver Mets

How was the surgery? I’m looking to get it soon. Nets in small intestines.

I don’t want to scare you, but it was painful 5 hour surgery. I was hospitalized x 4 days & demanded to go home on day 5; you get very little sleep in the hospital. I was on so much pain medication I remember nothing about being in the hospital. I took the pain pills for 4 days once I got home, then switched to Tylenol, I have a high pain tolerance & don’t like taking pain pills & was tired of sleeping. I had 44 staples & those caused a lot of discomfort.
After about 6 weeks I felt much better. Here’s a list of all the NETS cancer/locations that was removed:
A Peritoneum, pre-peritoneal fat
B Abdomen, left anterior abdominal wall, trocar site
C Abdomen, right anterior abdominal wall, trocar site
D Falciform ligament
E Liver, portion of right lobe of liver
F Liver, porta hepatis nodule
G Gallbladder
H Diaphragm, portion of right diaphragm and peritoneum
I Diaphragm, right diaphragm peritoneum medially
J Peritoneum, right gutter peritoneum
K Peritoneum, right lower peritoneum
L Bladder, portion of bladder peritoneum
M Peritoneum, left gutter peritoneum
N Peritoneum, left lower peritoneum
O Abdomen, sigmoid epliploica
P Pelvis, left pelvic peritoneum
Q Omentum, omentum nodules
R Sigmoid colon, wedge sigmoid colon
S Small intestine, small bowel mesentery
T Appendix
U Small intestine, small bowel lipoma
V Ileum, portion of mesentaric tumor and terminal ileum

Hi I had surgery in Australia in a regional town 3 years ago had 1.5m of ileum removed and 10 lymph nodes removed. My surgeon used fine tubes under my skin which gave pain relief every 4 hours for 3 days. I also had stitches that dissolve as well. pain level once tubes removed was around 5 out of 10. Was not allowed home until I did a bowel motion which for me happened day 6 at night and went home the next day. Follow up 2 weeks later. I now have liver lesions in which my medical team are monitoring. Surgery time was 4.5 hours and I do not remember being transferred from recovery to room. good luck.

That is what my doc orders for my liver tumors and they show clearly.

Interesting! I have several in my liver also.

I have been told I wouldn't get the once a month shot until one gets to be 1 inch. No talk about removal. Slow growing.

@amygirl
I had Histotripsy which was excellent for small tumors in the liver. They never returned.

I'll look that up. Never heard of it.

@ricki8: I would love to learn about your Histotripsy procedure for Liver Mets, since I have multiple liver Mets from my sm. Intestine NET primary.
What size tumors were done?
Where was Histotripsy performed?
How long ago was procedure?
Recovery time & side effects?
Thanks for sharing with your peer NET patients. Bette. dbamos1945

Please could you tell me where you got the Histotripsy done. I had a right haemocolectomy due to Grade 1 stage 4 NETS last year. The lymph nodes were clear but there is metastases in the liver. They decided not to do anything but I need to get the triple phase MRI done every 4 months. So far all good