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Looking Back - Your Early Warning Signs

Parkinson's Disease | Last Active: Jun 21 12:48am | Replies (43)

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@azsingularity

I already have OH... and have for many years. So, yeah, just one of MANY worrying symptoms.

I never thought much of all the other little things... orthostatic hypotension, insomnia, bouts of vertigo, occasional depression, etc. until the RBD was diagnosed and the Parkinson's possibility came into the picture.

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Replies to "I already have OH... and have for many years. So, yeah, just one of MANY worrying..."

I have OH and postprandial hypotension. Also, tremor, sore, stiff hands, restless legs, daytime grogginess, insomnia, urinary symptoms, and palpitations. I just had a Syn-One test for synucleinopathy by skin biopsy. My concern is MSA, which is even worse than PD. The test is suppose to be fairly accurate for PD MSA, PAF, and I think for REM sleep disorder too. Since they already dxed you with RBD that test may not offer you any usable info against PD. I pray that soon they will have treatments for all of these diseases, I’ve read there are some promising things in the pipeline, and for someone who is years away from getting sick, and if you do, there may be good treatments maybe even a CURE! That would be a miracle in my opinion. How did you figure out you needed to get tested for RBD? I’ve read lots of folks who have it, thought it was just the way they were and not a problem.