I was reluctant to start Prolia, but decided after a fall breaking my sternum to start it. I am a very healthy 68 year old woman. Walk and Exercise at the gym 3 to 4 days a week. No daily meds except Omeprazole. After a few days of the injection I would have terrible joint pain lasting about a week. After my 2nd shot I came down with an eye infection called Uveitis. It is caused by inflammation in the body. I was on a steroid eye drop for extended time, each time I would stop the drop the infection would flare back up. I took 3 shots of Prolia. Came back down with another eye infection, Steritis. At this time my ophthalmologist told me Prolia is directly related to these eye infections, and the doctors are fully aware of this side effect. I was due for my 4th injection Feb 25. I decided not to take it anymore. I am not using any medication for my Osteoporosis. I have gastritis issues from using Fosamax, so at this point I’ll take my chance on hopefully not falling. The end of April 25, my hair started falling out by the hands full. I have an appointment with the dermatologist, but I began thinking it could be from the Prolia. I went to research this and found this site. Wanted to share all my experiences using Prolia in case this could benefit others.
I appreciate all the information given. Thank you everyone, and best of luck to all.
Thank you for that. Just one more reason not to use Prolia!
I quit after the 3D shot and am now using Risedronate for about a year now. No side effects! One pill once a week.
My hair is coming back thank goodness!
Thank you for sharing your information. I have come down with serious eye infections and my ophthalmologist stated the infections are caused by inflammation in the body, and also stated the eye inflammation is directly related to Prolia. He told me next time I have the eye infection we will need to do blood work to find the cause. After receiving his information I decided to stop Prolia, and all other osteoporosis medicine. I also recently stated losing hair by the hands full. Best of luck to you!
So sorry to hear. Wishing you all the best. My hair started growing back last Oct/Nov after 6 months from my 3rd shot. May have an inch or two starting to come back. It will be a long time before I know if it will ever come back. Currently wearing a wig.
I was changed to Actonel weekly. Hopefully it covers the rebound.
This is my first time posting. To those of you wondering if Prolia caused your hair loss, below I share what I just read on the website, Medical News Today. I was researching information about Evenity, which may be my next move.
........................................................................................
The text is below. It is not allowed to post the URL, but if you want to see it with your own eyes, go to Medical News Today and type in Evenity.
Here is the text I saw, word for word:
Is hair loss a side effect of Evenity?
No, you shouldn’t notice hair loss from Evenity treatment. Hair loss wasn’t a reported side effect in the drug’s clinical trials.
However, other medications prescribed for osteoporosis may cause hair loss. For example, it’s possible for Fosamax (alendronate) and Prolia (denosumab) to cause hair loss.
They said the same about Prolia when I first looked in to it.
About a year later they admitted that hair loss was a side effect.
I have since been using Risedronate once a week. So far so good.
I would just like to start by saying I’m so glad I’m not alone! Although sorry we are going through this very stressful time. I have had a total of three Prolia shots. I noticed some hair loss after the first shot so I looked up possible side effects, as I didn’t find it listed I just put it down to coincidence. After my second shot, the hair loss was a little more. I was very hesitant to take the third one but the warnings of increased bone fractures are pretty scary so I went ahead and had it. That was on April 18th., for the past two weeks the hair loss has become very noticeable. I know at the age of 80 one expects a certain thinning. I’ve always had very thick hair, but now it so noticeable thin it has made me very self conscious. I am normally a very active woman but I just want to stay hidden at home! There is no way that I will take any more shots of Prolia. I have tried both Fosmax and Actonel but due to SBS was unable to tolerate them. I am at a loss. Has anyone had hair regrowth after discontinuing Prolia? Thank you for reading my woes and wish you all well.
My hair fell out in great gobs right after my 3d Prolia shot.
This was 2 years ago. I refused to get any more shots so the doc put me on Risedronate. I haven’t had any repercussions.
I am now 79. I had a fall a couple months ago but didn’t break any bones.
My hair has come back a long way but still not as thick as it was.
Before having read your comment I posted my own tale of woe similar to yours. I’m happy to hear your hair is growing back. I hope the same happens for me.
Connect
Connect
Like
Helpful
Hug
Thank you for that. Just one more reason not to use Prolia!
I quit after the 3D shot and am now using Risedronate for about a year now. No side effects! One pill once a week.
My hair is coming back thank goodness!
-
Like -
Helpful -
Hug
4 ReactionsSo sorry to hear. Wishing you all the best. My hair started growing back last Oct/Nov after 6 months from my 3rd shot. May have an inch or two starting to come back. It will be a long time before I know if it will ever come back. Currently wearing a wig.
I was changed to Actonel weekly. Hopefully it covers the rebound.
Good Luck!!!
-
Like -
Helpful -
Hug
7 ReactionsEvenity is made by the same folks as Prolia.
They said the same about Prolia when I first looked in to it.
About a year later they admitted that hair loss was a side effect.
I have since been using Risedronate once a week. So far so good.
-
Like -
Helpful -
Hug
3 ReactionsI would just like to start by saying I’m so glad I’m not alone! Although sorry we are going through this very stressful time. I have had a total of three Prolia shots. I noticed some hair loss after the first shot so I looked up possible side effects, as I didn’t find it listed I just put it down to coincidence. After my second shot, the hair loss was a little more. I was very hesitant to take the third one but the warnings of increased bone fractures are pretty scary so I went ahead and had it. That was on April 18th., for the past two weeks the hair loss has become very noticeable. I know at the age of 80 one expects a certain thinning. I’ve always had very thick hair, but now it so noticeable thin it has made me very self conscious. I am normally a very active woman but I just want to stay hidden at home! There is no way that I will take any more shots of Prolia. I have tried both Fosmax and Actonel but due to SBS was unable to tolerate them. I am at a loss. Has anyone had hair regrowth after discontinuing Prolia? Thank you for reading my woes and wish you all well.
Before having read your comment I posted my own tale of woe similar to yours. I’m happy to hear your hair is growing back. I hope the same happens for me.