1. < Caregivers

Supporting Glioblastoma Patient: What can I expect as the caregiver?

Posted by mgm4kc @mgm4kc, May 10 8:38am

My husband will have resection surgery next week. What should I expect when he comes home? How can I prepare? It's me, my husband and the dog... a couple of friends are very supportive but I worry losing these connections as our lifestyle changes due to treatment. Thanks for your insight and sharing of experiences, lessons learned ...

Interested in more discussions like this? Go to the Caregivers Support Group.

drelsefjerdingstad | @drelsefjerdingstad | May 20 4:59pm

I am praying for you and your husband. My brother has been diagnosed with glioblastoma. I believe that new therapies car T cell gene therapy, oncolytic viruses, TMZ and radiotherapy and TTField offer hope. More hope than what you may believe now.

REPLY
8positive | @8positive | May 21 12:09pm

Make sure to have him use sun screen when going outside the drugs can cause sunburn which hurts!

REPLY
Moderator
Colleen Young, Connect Director | @colleenyoung | May 23 5:17pm

@mgm4kc, I added your discussion to the Brain Tumor support group as well so you can meet fellow glioblastoma caregivers like @IndianaScott @saintdijo @lemertens @red77465 @angls64 @marybeths @alibit11 @ruthannray.

@mgm4kc, how did your husband's surgery go? How is recovery going? And how are YOU doing?

REPLY
1 reply
saintdijo | @saintdijo | May 23 7:09pm
In reply to @colleenyoung "@mgm4kc, I added your discussion to the Brain Tumor support group as well so you can..." + (show)
@colleenyoung

@mgm4kc, I added your discussion to the Brain Tumor support group as well so you can meet fellow glioblastoma caregivers like @IndianaScott @saintdijo @lemertens @red77465 @angls64 @marybeths @alibit11 @ruthannray.

@mgm4kc, how did your husband's surgery go? How is recovery going? And how are YOU doing?

Jump to this post

I added an update….looks more like I commented on my own site tho….not sure. But STILL ENDURING I Hate this Cancer

REPLY
Please sign in or register to post a reply.