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Smoldering Multiple Myeloma and symptoms

Blood Cancers & Disorders | Last Active: 3 days ago | Replies (16)
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@donna195

I just was diagnosed with SMM on Wednesday after my BMB showing 20-30% plasma cells neoplasms, kappa lambda ratio < .1 and an abnormal number of plasma cells for my age of 60. I was originally diagnosed in June 2023 with MGUS after having a DVT and discovering i have genetic leiden factor V. In January 2025 me abnormal protein band 1 and my IgG Lambda had increased 25% in 12 months. My hematologist oncologist is being proactive and i am now scheduled for a full body CT PET scan August 1.

I have numbness in my right thumb and two fingers and sore low back and left outer hip 24/7. I have heard promising results from others who have undergone treatment. Until they tell me I have something to worry about, I am going to keep my journal and live every day to the fullest!

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Replies to "I just was diagnosed with SMM on Wednesday after my BMB showing 20-30% plasma cells neoplasms,..."
maddogstormy | @maddogstormy | May 23 8:20pm

Hi Donna
Thank you for sharing this part of your story. I am also having a follow up PET scan in August. My full body bone marrow scan in April was negative thankfully. I was wondering if you have heard anything about new tracers they are using to capture any emerging neoplasms that are in the marrow or bone tissue. The research seems to be changing radically monthly. I am feeling more prepared for my upcoming quarterly appointment and labs. I do appreciate your thought about valuing every moment to the fullest. Thanks. Brian

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mattymatilda | @mattymatilda | May 28 4:38am

Hi. SMM is very serious and it's great your doctor is being proactive. It's great and good advice to stay positive and live your best life every day! Thank you for the reminder.

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