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Waldenstrom macroglobulinemia (WM) 3 years: Might I be in remission?

Blood Cancers & Disorders | Last Active: 5 days ago | Replies (43)
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@mrkent

What symptoms should I be looking for with Waldenstroms? After three years I am still preety much asymptomatic except for fatigue and neuropathy in feet. Now starting to have unexplained weight loss (lost 15 b in last 6 months with no change in diet). Just wondering what to look for? Hard to find others with this diseae!

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Replies to "What symptoms should I be looking for with Waldenstroms? After three years I am still preety..."
zeedee1 | @zeedee1 | May 23 3:20pm

Forgot about the weight loss.. 25 lbs in 3 years and cold and numb feet and fingers

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michaelah | @michaelah | May 23 10:10pm

get a test for anti- mag titers I forget the exact test (chemo-brain) but it's rare but 4% of WM have it, like me. Brukinsa has really helped. So, get the test.

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breathernow | @breathernow | May 24 12:26am

3 yrs diagnosis waldenstrom, I agree with you about navigating the symptoms! Fatigue is my travelling companion

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