How do you get some answers

Not sure where you live but Mayo in Rochester has a Long covid clinic. I went there and it was wonderful. It does sound, from my experience, that they would accept you as a patient.

i would bet you have long covid based on these symptoms.
i have been where you are, going through every blood test, lots of CT and MRI scans and finding everything inside normal. looking for everything without accepting the obvious.
there is a lot of good information on this site. follow up on the links that relate to you. it will give you ammunition to deal with your health providers. continue to be insistent. thank them for their concern and all they doing for you.
last year my health provider set up a Long Covid group in my area. i was referred to it and it has been very helpful.
this process takes good luck and persistence.

Your story sounds similar to mine. I hope that you get some answers and Drs that listen and will focus on you and the cause. hopefully someday

Your symptoms are also familiar to me. Mine started in 2022. I had COVID twice. I got it in January 2022, and then in March of 2022. June 2022 is when I woke up one day sick. I went to my doctor, got blood work. They thought I had RA. Epstein Barr Virus was reactivated and I tested positive for the anti-nuclear antigen titer. The RA doctor was useless and rude. Would not even consider my thoughts about Long COVID. I know that is what I have...3 years later. It is my experience that treating the symptoms is what is needed. Some can't be treated, like the tinnitus, and others. I have found that my ADHD medication (Vyvanse) helps me with fatigue and brain fog (some anyway). I also use Gabapentin and started taking Cymbalta. I do not like using medications, but I have to function. I do not know if you have post-exertion malaise (PEM), but I know in my case, If I do activities (even minor physically or mentally) the next day I feel awful upon awakening. I am in school online, and even writing a paper can cause the PEM. I have to pace myself. I have had to stop eating a lot of salt, sugar and can only drink water. Long COVID mimics so many other autoimmune diseases. I was tested for all of them and did not have them, however, my symptoms are similar to many. Find a doctor (primary care) that is willing to work with you on helping to treat the symptoms. Also, I suggest going to http://www.recovercovid.org
Hang in there...just for today!

Your tests will continue to show 'normal' as all of mine did until I found the right person. Figuratively speaking, after going through the entire medical community around Charleston, SC and the Mayo Clinic in Rochester I refused to give up and turned to 'Dr. Google' and 'Dr. YouTube'. Very grateful for all the attempted help along the way, but nobody could help me, even Mayo (unless they've change their approach). I selected Dr. Bruce Paterson and his team, took his targeted blood test and surprise, the test showed many elements (for me 14) out of bounds. Some slightly, and some 100x! I was never so happy to have been called abnormal :). If you know about something you can usually fix it. I am about 4 months into his process and feeling much better, returning to normal for the first time since November 2021.

Hi - did insurance pay for Patterson bloodwork and appointments?

Thanks

@bermuda8 I am on Medicare and now that I have hit my maximums for the year, the drugs are free. The Naltrexone that was just added is not covered, regardless. I have my bills for my virtual appointments, blood panels, and other costs ready to send in and ask, but at this time I don't know if they will be covered or not. I took this decision to spend whatever amount was needed to feel well again.