Connect
← Return to Smoldering Multiple Myeloma and symptoms
Discussion
Smoldering Multiple Myeloma and symptoms
Blood Cancers & Disorders | Last Active: 9 hours ago | Replies (10)Comment receiving replies
I'm sorry you're experiencing some new symptoms. I am also very curious about bone pain. It's been difficult to find a really good description of what it feels like. I have pain in one ofmy thighs. In the front .That's rather indescribable. It's not in the muscle or tissue because if I massage it roughly I can't feel the pain. I've had great difficulty trying to describe it to my doctors. What does yours feel like?
Replies to "I'm sorry you're experiencing some new symptoms. I am also very curious about bone pain. It's..."
My hip & back feels like it's in my actual bones
I've always had back problems but not the hip
Connect
Thank you Matty.
Sorry to hear you are having some similar questions. It’s kind of weird. I have had a sore neck and shoulder for a year now. Like I slept wrong. 3 courses of PT to help with no real change. Weekly massage work primarily focused on the Vegas nerve. Some relief but not lasting. It’s now difficult to turn to look over my shoulder. X-rays negative. MRI spine negative. MRI bone marrow scan negative. CT scan negative. It’s continuing to get worse and now I have this sensation of a constant humming ache almost everywhere. Like when your immune system kick starts with a twinge. Almost like I had walked 12 miles but I have not been able to work out for four months due to fatigue. Sometimes I try to walk to work and have to take a car service just a block from home. I am just hoping I am not active and can still qualify for a clinical trial starting in August at Dana Farber. I am blessed with good care all round. A wonderful family and 2 children and I am also concerned and working to prepare for the worst case and to prepare for the best case. Both are challenging.