← Return to Anyone experience side effects while on Dupixent ?

Discussion

Anyone experience side effects while on Dupixent ?

Lung Health | Last Active: 11 hours ago | Replies (8)

Comment receiving replies
@bshiver

I am so sorry to hear this. Steroids/prednisone usually only cause those symptoms when weaning of or attempt to discontinue. In fact, I was placed on prednisone due to the joint pain and inflammation in discontinuing Dupixent. You are in my shoes from back in 2019, but there is plenty of information available on this adverse reaction to Dupixent now. I urge you to look into Dupixent causing joint inflammation/pain, seronegative arthritis, feeling unwell, etc. It is also listed on Dupixent official website that it can cause these symptoms. Cut and paste some of these into your browser. There are many sites which list arthralgia/seronegative arthritis as a side effect. https://www.drugs.com/medical-answers/dupixent-joint-pain-3552823/ https://www.dupixent.com/frequently-asked-questions https://www.aaaai.org/allergist-resources/ask-the-expert/answers/2022/arthralgia https://www.reddit.com/r/eczeMABs/comments/zc89hc/dupixent_and_joint_pain/?rdt=61993 https://pmc.ncbi.nlm.nih.gov/articles/PMC8814740/ https://pmc.ncbi.nlm.nih.gov/articles/PMC8814740/ I hope that when/if you do decide to discontinue Dupixent that your symptoms disappear and that you are not left with any permanent damage. May I ask for what diagnosis are you taking Dupixent?

Jump to this post


Replies to "I am so sorry to hear this. Steroids/prednisone usually only cause those symptoms when weaning of..."

Thank you! I am going to stop it. I can hardly walk at this point and I’m miserable. My pulmonologist put me on it for my asthma. I couldn’t tolerate any of the inhalers. I’ve now developed adrenal insufficiency from being on prednisone for a year. It’s a shame the Dupixent is causing the else side effects because it worked wonders for my chronic sinusitis which I’ve had for a year, and it also helped my asthma. After just the loading dose shots of the Dupixent I could breath out of both nostrils, smell and taste again within a few days. It really worked wonders. I know though it has to be the Dupixent causing all of this pain and I l’ve also been getting UTIs since starting it.
Again, I’m so sorry the Dupixent caused such horrible long term problems for you!
I called the pharmacist again after I read your first message and this time the one I spoke to said to contact my doctor and she recommended stopping it saying yes it can cause all of this. She did say though my symptoms will all resolve after stopping it, which you know all too well isn’t true for everyone. She should not have told me that.