1. < Digestive Health

Median Arcuate Ligament Syndrome (MALS)

Posted by Kari Ulrich, Alumna Mentor @kariulrich, Dec 26, 2016

I am looking for other patients that have been diagnosed with Median Arcuate Ligament Syndrome. Although it is caused by compression of the celiac artery many people experience abdominal pain after eating, diarrhea, food avoidance. Usually the first doctors they see are GI doctors. It is a diagnosis that is made after everything else is ruled out. I am curious if anyone else has had surgery?

Interested in more discussions like this? Go to the Digestive Health Support Group.

bpayne | @bpayne | Jul 29, 2017

I was just diagnosed 2 days from a CT scan and have appointment with vascular surgeon on August 1st. This is so scary not sure what to expect? More test envolved??

REPLY
1 reply
Kari Ulrich, Alumna Mentor | @kariulrich | Jul 29, 2017
In reply to @bpayne "I was just diagnosed 2 days from a CT scan and have appointment with vascular surgeon..." + (show)
@bpayne

I was just diagnosed 2 days from a CT scan and have appointment with vascular surgeon on August 1st. This is so scary not sure what to expect? More test envolved??

Jump to this post

Welcome @bpayne, Have you had any GI work up done? What symptoms ar you having? Depending on the doctor many like to have you get a celiac block first to see if it helps the pain or not.

REPLY
bpayne | @bpayne | Jul 29, 2017

Yes egd, us of gallbladder and Judaism scan. All negative. All blood work is good.

REPLY
bpayne | @bpayne | Jul 29, 2017

That's a hida scan! Not sure what this spell check was saying!

REPLY
Kari Ulrich, Alumna Mentor | @kariulrich | Jul 29, 2017

Ha ha Got to love spell check! Do have any motility issues?

REPLY
1 reply
bpayne | @bpayne | Jul 29, 2017
In reply to @kariulrich "Ha ha Got to love spell check! Do have any motility issues?" + (show)
@kariulrich

Ha ha Got to love spell check! Do have any motility issues?

Jump to this post

Not sure what you mean by motility issues?

REPLY
Sharon | @cornishrex | Jul 29, 2017

Kari you are so wonderful at answering the questions. What is it about Celiac Artery Compression Disorder that causes gastrointestinal disorders? Between the doctors telling me I had GERD, a small hiatal hernia and very mild diverticulosis over the past 18 years none of that seems to explain the constant pain I have and the fact that I do become constipated easily. And I eat a mostly vegetarian, high fiber diet. I feel so much like I am being dismissed and written off by the diagnosis of the day instead of finding out the real problem. I am so glad this page is here. Still waiting to see a vascular surgeon familiar with this problem.

REPLY
1 reply
bpayne | @bpayne | Aug 3, 2017
In reply to @lmtuska "Hello, my 16 yr old Daughter has been diagnosed with MALS. We are coming to Mayo,..." + (show)
@lmtuska

Hello, my 16 yr old Daughter has been diagnosed with MALS. We are coming to Mayo, MN, in February for an open surgery with a Vascular Surgeon. I, too, am interested in connecting with others to best understand this condition, follow up care and research resources. I would be interested in the webinar. Thank you Colleen!

Jump to this post

What doctor at mayo do you see? Was it in Jacksonville fl?

REPLY
bpayne | @bpayne | Aug 4, 2017

What Mayo CLinic do you use? Is it in Jacksonville, FL?

REPLY
1 reply
View MoreView Less
Please sign in or register to post a reply.