@genedoms I would add a couple that are specific to MGUS. Remember, MGUS is not cancer. we have members who are diagnosed with MGUS who have lived with that diagnosis for decades and it did not progress to smoldering or multiple myeloma.
What testing was done specific to the M paraprotein that triggered the MGUS diagnosis?
What were the results of that specific testing and what do those numbers mean?
If those numbers change, at what point will your physician become concerned that there is progression?
Does it make sense to get a referral to a specialist in multiple myeloma? (in my opinion that it should be a yes. You don't have multiple myeloma or cancer with an MGUS diagnosis, but you want to be treated by a specialist who is very conversant with multiple myeloma and treats it routinely. Think about a colonoscopy… You want somebody who does lots of colonoscopies rather than the guy or gal who does one or two a year, right?)
Specialists who treat MGUS see patients semi annually or annually generally speaking. You want to know how often you should be seen, but you also want to consider your comfort level and if your doctor says annually and you're not comfortable with that, negotiate being seen more regularly. You want your anxiety to be as low as possible because high levels of anxiety will also make you feel sick.
hang in there. All of us were understandably nervous after we were diagnosed and it takes a while, but hopefully soon you will feel more confident in your situation and you will be comfortable in your new baseline. Hugs!