NALU Peripheral Nerve Stimulator

Posted by lucasmom @lucasmom, May 19 1:55pm

Does anyone have any experience with the NALU brand Peripheral Nerve Stimulator work for chronic pain associated with Degenerative Disc Disease. I've had several fusions...nothing is helping.

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blewbell | @blewbell | May 20 3:45am

I’m scheduled for an implant in June. During the trial, it helped me sleep better. After the trial, I’m back to sleeping little and feeling horrible. I have DDD but I’m all fused except for C1-C2 so that solves the DDD problem.

lucasmom | @lucasmom | May 20 12:39pm

In reply to @blewbell "I’m scheduled for an implant in June. During the trial, it helped me sleep better. After..." + (show)

Hi Blewbel
My Dr. is scheduling me for the NALU device. I am fused at Lumbar and Cervical only and the rest of it is DDD. I have a severe Thecal sac nerve impingement. I have had nerve ablations which helped somewhat but still cannot sleep. I bought a $35 TENs unit on AMazon, it felt good but the patches have caused a bad rash so I'm waiting for it to clear up. I am praying this device helps as zero quality of life right now.

I have consulted with a few top surgeons here in CA, there is nothing they can do except for fuse the whole spine like yours...it terrifies me so I can't even consider it. Most recently I was told that the only thing possible was to fuse my whole spine....2 month recoup in nursing home....I can't 🙁 Please share your experience with the total fusion.

Thank you for responding. I am new to this site, just looking for some hope.

pierwell | @pierwell | May 21 9:00am

I’ve had the Nalu stimulator with two leads for occipital and trigeminal neuralgia. It definitely helps, if only as a pleasant distraction from the headache pain.

mebdeb | @mebdeb | May 27 12:04pm

Are they also not giving you any pain meds?

lucasmom | @lucasmom | 5 days ago

I am currently on 50 mcg fentanyl patch plus 3 oxicodone tablets 20 mg per day. I know this is a horrendous
amount of opioid but it's not even enough to make me comfortable......praying this will help. I've heard some can even discontinue the opiods? I wish they would do these types of procedures BEFORE they rx opiods.....but Medicare rather pay for cheap drugs

pierwell | @pierwell | 5 days ago

In reply to @mebdeb "Are they also not giving you any pain meds?" + (show)

I’m allergic to opioids so Celebrux is my drug plus max amount of Tylenol.

lucasmom | @lucasmom | 5 days ago

In reply to @pierwell "I’m allergic to opioids so Celebrux is my drug plus max amount of Tylenol." + (show)

I also take Celebrex. After over 15 years of being prescribed and taking 3 800 mg Ibuprofen I had to stop it all as my kidneys were suffering....so I only get ONE 100 mg. Celebrex...not enough but all I can have.

pierwell | @pierwell | 2 days ago

In reply to @lucasmom "I also take Celebrex. After over 15 years of being prescribed and taking 3 800 mg..." + (show)

Can you supplement with acetaminophen?

lucasmom | @lucasmom | 1 day ago

In reply to @pierwell "Can you supplement with acetaminophen?" + (show)

Unfortunately my Dr. had me stop acetaminophen or ibuprofen when my lab test showed problems with my kidneys from taking 2400 mg. daily for over 20 years.