Multiple lymph nodes throughout body

Posted by menetski4 @menetski4, May 15 6:54am

I have a history of MGUS which was diagnosed after a T6 vertebral compression fracture. Dexa shows mild osteopenia. Now I noticed multiple lymph nodes in my legs, arms and along ribs, for the past year. They are persistent and only tender upon palpitation. Mspike and light chain ratio are low. I don’t have an appointment with the oncologist for several months. Any ideas? Are these all related?

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2121 | @leslie2121 | May 15 2:58pm

Hello:
I also have MGUS but if I noticed something like swollen lymph nodes, I would let my doctor know asap.

menetski4 | @menetski4 | May 15 3:23pm

In reply to @leslie2121 "Hello: I also have MGUS but if I noticed something like swollen lymph nodes, I would..." + (show)

I guess I should have clarified my concern. I was just asking if anyone has experienced the same. I have seen two oncologists who have “blown off” my concern based on low Mspike and light chain ratios. They both told me to see a rheumatologist? That doesn’t make sense to me.

2121 | @leslie2121 | May 15 5:03pm

Thanks for clarifying- it does seem odd to dismiss.
Maybe see a rheumatologist to see if there’s anything autoimmune going on?
Good luck and let us know if you think of it -that is a bit concerning to me.

rdm86 | @rdm86 | May 20 9:35pm

have you tried putting warm washcloths over them. that will reduce any swelling. when my son had a inflammed lymphnodes, they have been saying he has cancer for 8 yrs. A rheamotologist can rule out some DNA to see if this could be something else. Hope you find your answers. All the testing and procedures my son has done, they still have not found any evidence of any type of cancer and even his DNA shows he is not a candidate for it. That doesn't mean he can't get it, just not genetic for him to do so. Have you ever thought about having allergy testing done?? You may be allergic to something that is causing this flare. You should not have to wait months for this to be diagnosed. and make sure it is a diagnosis and not just string you along for whatever they can get out of your insurance company. Just being brutally honest with how my son has been treated for over 8 yrs now. he is only 39.

menetski4 | @menetski4 | May 21 5:14am

In reply to @rdm86 "have you tried putting warm washcloths over them. that will reduce any swelling. when my son..." + (show)

Thanks for your response and kind thoughts. The multiple lymph nodes do not bother me unless I bumped up to something or am, perhaps, applying lotion and suddenly I feel them. It is peculiar that they have popped up since the vertebral fracture of unknown cause. I keep wondering if they are related. Now that the fracture has healed I am back to hiking and biking but it took about 18 months to be mostly pain free.
Cell-free DNA testing may be an option.
Good to hear your son is 39 and nothing has apparently come from it.

edl75 | @edl75 | May 21 9:40am

I would not let tender or swollen lymph nodes go by without evaluation by doctor. I have MGUS but also prior to that had 1 swollen lymph node that wasn’t hurting or bothering me. Had that lymph node checked and turned out I had Non Hodgkins Lymphoma. No symptoms nothing unusual with blood work. Get it checked better safe then sorry. Good luck

menetski4 | @menetski4 | May 21 10:44am

In reply to @edl75 "I would not let tender or swollen lymph nodes go by without evaluation by doctor. I..." + (show)

Will do. Thanks. I was able to move my appointment up to Jun 3.

8positive | @8positive | May 21 12:05pm

Also make sure they consider BMB

edl75 | @edl75 | May 21 12:18pm

In reply to @menetski4 "Will do. Thanks. I was able to move my appointment up to Jun 3." + (show)

Good luck God Bless

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