I have had sarcoidosis for over 20 years. The first 5 or so was very. I went to work and bed. And sometimes slept at my desk. I've been exercising for 5 years, try to eat healthy. I have good days and bad. I do go to Mayo and very happy I do. They take time for you and are very knowledgeable. My test are shown to me and explained. Thank goodness mine has never left my lungs. It is something that you have to learn to deal with. Good luck.

I use to cough so much, my vocal cords were filled with sores. They wanted to scrape them. After reading about it, I wouldn't let them. I told them I'd teach myself not to cough. I carried water everywhere. I used castor oil packs on my chest. This cleared up the pain and congestion in my chest. I still cough some put not near as much. The shortness of breath is bad on some days. I try to slow down and will stop until I catch my breath. I deal with it because I don't like taking medication. I do take turmeric and it does help. When I stay on a anti inflammatory diet this helps the most. I have oxygen when I do cardio. I was on prednisone for the first 7 years. I hated it. I take a nasal spray for allergies. I am incharge of my health and I must do everything I can to promote it. I fail a lot, but keep on trying. Good luck.