Hi, I have done everything you have and so much more. I’ve even gone on trial run with IBSRELA the last drug to hit the market and it didn’t work.
My situation is quite unique. I had a very long surgery in June 2020 on my cervical spine and after that my bowels never woke up. I went through two years of testing in Boston and the conclusion remove my entire colon because a partial removal with motility disorder won’t work.
I actually was scheduled twice and two weeks before both, I canceled. I was terrified. Now almost 5 years later, I’m 70. I’m running out of time and both my PCP and Gastro want to have Mayo look at me.
I take 25-30 laxatives nightly. My am routine is a suppository followed by an enema. My doctors are completely aware. They are concerned push will come to shove and what then. I moved to Georgia and I probably wouldn’t make the one hour drive to the best hospital if I needed emergency surgery.
I did everything from what felt like 100 tests in two years to every medication. Even off label meds that cause diarrhea as a side effect and still nothing. Every 10-14 days my gastrointestinal orders a colonoscopy cleanse but no colonoscopy. I do this to clean out.
I work with a dietitian for food. I also developed gastroparesis. I don’t know if surgery is what I need to do or just keep pushing this as long as I can. It’s becoming harder and harder.