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Pulmonary Sarcoidosis: How are you dealing with it?

Lung Health | Last Active: Sep 23, 2023 | Replies (126)

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@rod0852

Yes on both, and some heart issues as well. I still work and walk 3 miles a day when I have time. I guess my biggest question for the group is when do you know when to get on steroids again? I feel drained and week most of the time. There is no one factor that says it’s flaring up. Thanks Colleen

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Replies to "Yes on both, and some heart issues as well. I still work and walk 3 miles..."

@rod0852 My husband with sarcoid goes on steroids when his pulmonologist tells him. You sound like you could use them about now. My husband doesn’t get lots of side effects from them - except feeling better! I wish he could be on them all the time.