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Pulmonary Sarcoidosis: How are you dealing with it?
Lung Health | Last Active: Sep 23, 2023 | Replies (126)Comment receiving replies
Welcome to Connect, @rod0852. You'll notice that I moved your post to this existing sarcoidosis discussion. I did this so that you can connect with other members talking about this condition. Simply click VIEW & REPLY in the email to read through past posts.
You may also wish to see these discussions:
– Sarcoidosis in the Autoimmune Diseases group http://mayocl.in/2ixthUD
– Sarcoidosis https://connect.mayoclinic.org/discussion/sarcoidosis/
@rtown789 @nancylungdiseas and @yturner also recently joined this group and are looking to connect with others living with sarcoidosis of the lungs.
Rod, you mention that you have a constant cough. Some of the other members have talked debilitating fatigue and shortness of breath. Are you also experience low levels of energy and fatigue?
Replies to "Welcome to Connect, @rod0852. You'll notice that I moved your post to this existing sarcoidosis discussion...."
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Yes on both, and some heart issues as well. I still work and walk 3 miles a day when I have time. I guess my biggest question for the group is when do you know when to get on steroids again? I feel drained and week most of the time. There is no one factor that says it’s flaring up. Thanks Colleen