← Return to Pulmonary Sarcoidosis: How are you dealing with it?

Discussion

Pulmonary Sarcoidosis: How are you dealing with it?

Lung Health | Last Active: Dec 5 12:30pm | Replies (127)
Comment receiving replies
@colleenyoung

Welcome to Connect, @rod0852. You'll notice that I moved your post to this existing sarcoidosis discussion. I did this so that you can connect with other members talking about this condition. Simply click VIEW & REPLY in the email to read through past posts.

You may also wish to see these discussions:

– Sarcoidosis in the Autoimmune Diseases group http://mayocl.in/2ixthUD
– Sarcoidosis https://connect.mayoclinic.org/discussion/sarcoidosis/

@rtown789 @nancylungdiseas and @yturner also recently joined this group and are looking to connect with others living with sarcoidosis of the lungs.

Rod, you mention that you have a constant cough. Some of the other members have talked debilitating fatigue and shortness of breath. Are you also experience low levels of energy and fatigue?

Jump to this post

Replies to "Welcome to Connect, @rod0852. You'll notice that I moved your post to this existing sarcoidosis discussion...."
rod0852 | @rod0852 | Oct 22, 2018

Yes on both, and some heart issues as well. I still work and walk 3 miles a day when I have time. I guess my biggest question for the group is when do you know when to get on steroids again? I feel drained and week most of the time. There is no one factor that says it’s flaring up. Thanks Colleen

VIEW AND REPLY