Hi @nancylungdiseas and welcome to Connect! I moved your post to this existing sarcoidosis discussion so that you can connect with other members who have this condition. Simply click VIEW & REPLY in the email and you can read through past posts.

You may also wish to see these discussions:

– Sarcoidosis in the Autoimmune Diseases group http://mayocl.in/2ixthUD
- Sarcoidosis https://connect.mayoclinic.org/discussion/sarcoidosis/

Having your breathing tests get better but the tumors getting larger must be both confusing and scary.

I'd like to bring @chesneydell1965 @bboxer @rickys @magspierce @ryman and @yturner into this discussion, as have some experience with sarcoidosis and can empathize with the apprehension about starting a new medication, the battery of tests and lack of energy.

Nancylungdiseas, what are some of the side effects that concern you the most of this potential medication treatment?