Diagnosed with MGUS. What questions should I ask the hematologist?

I always tell people on here to get a baseline. Full bloodwork, 24/hr urine. Skeletal survey. Then depending on those numbers they may have you do a BMB. But don’t google doctor yourself, MGUS has a 1% progression probability a year. See if they want you to do bloodwork prior, if they say they will do it there ask to have a script sent because you would like it prior to your visit. (Less co-pays) lol. Give 7-10 days for a MGUS bloodwork results to post. Also, if your doctor has a specific lab in his/her office go to that lab outside the office because if you go to Quest and then you go to LabCorp, how they do their results differ.

Thanks. Your advice makes a lot of sense. It is clear this is the beginning of a learning process. My PCP of 42 years just retired so I am starting this with a couple of new docs but I feel good about the referral I got. Thanks again for your input.

I have a different diagnosis than you so you can look at my list and substitute your diagnosis and a few drugs being tried for your disorder. There are oncology doctors that specialize in your disorder. My last suggestion on the list was to ask about specialists. I would wait on that on until you feel you are not getting the care you want. I go once a year to Mayo Clinic to a Primary Myelofibrosis (PMF) specialist.
Hope this list gives you ideas for your list.

This is the list of questions I came armed with for my appointment with a hematologist:
What can you tell me about
Are there stages of PMF?
* What is my prognosis?
* How likely is it that my PMF will respond to treatment?
* What are my treatment options?
* Momelotinib (Ojjaara) was approved for medical use in the United States in September 2023.[31] It is indicated for the treatment of intermediate or high-risk myelofibrosis, including primary myelofibrosis or secondary myelofibrosis [post-polycythemia vera and post-essential thrombocythemia], in adults with anemia.[
* What types of research are being done for PMF in clinical trials? Do clinical trials offer additional treatment options for me?
* Do I need to start treatment right away?
* What follow-up tests will I need, and how often will I need them?
* Who do I call for questions?
* Have you had other cases of PMF
* What red flags should I look for in future to be concerned about.
* Should I seek a specialist