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Margin of error??

Lung Health | Last Active: 7 hours ago | Replies (14)

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@frouke

I know what you’re talking about and I am dealing with the same situation, I get the results from the ct scan and it sounds like things are going on but they deemed it as stable. I’m still not sure what they are doing and getting more information isn’t easy to get, most of my questions are just not answered and if I were able to get new doctors to help me I would but doctors are hard to find where I live, sometimes I just feel like a trapped person when it comes to my health and also my world. I think that you should keep asking questions to get better understanding of your scans, if you’re not satisfied then find another doctor, I’m assuming that you can do that where you’re located, if not then I’m sorry, welcome to my world, best wishes.

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Replies to "I know what you’re talking about and I am dealing with the same situation, I get..."

That world is larger than you might think . I get 15 minutes with my primary Doctor today. An hour to get there , to have weight , BP , temp and oxy check. My doctor hesitates to speak about my COPD. Tells me I need to talk to my pulmonologist . They do the same thing at his office . No new ideas or treatments . I have asked for a bipap . Wants me to spend the night in a sleep center . ( His sleep center) That I will not do. They do have self adjusting bipap machines. I guess he does’t know that. We do the best we can where we are . Blessed Be, Crystalina

I feel your displeasure. At the start of our journey, we waited 2 weeks for my husband’s results. Then bc we strongly asked for them, we were handed results print out with no clinician to discuss. They were not critical for the cancer center , but we had no idea if ok or not.

Now we know where to get our own results. Treatment at cancer center is great, but communication is poor.