← Return to Cutaneous T-cell lymphoma consistent with mycosis fungoides

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@darenh

Just want to say Hi to everyone I was finally diagnose with MF (Mycosis Fungoides) about 2 yrs ago after several Dermatologist visits and punch test/ scrape test they all thought it was eczema or psoriasis. I started with Topical clobetasol and had a bad reaction to it them we tried a couple of other topical ointments to very little avail, what has really help is UVB light therapy. If you saw me 2yrs ago to know you would never know I have MF. Light therapy has really helped me, hope this really helps others and as we all walk down this road with MF / CTCL just know you're not alone as you can see from this forum. thanks to everyone who shares and letting us know what to expect or how to treat in other stages of our journey.

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Replies to "Just want to say Hi to everyone I was finally diagnose with MF (Mycosis Fungoides) about..."

Welcome to Connect, @darenh! It’s really interesting the different treatments for CTCL with unique results for each patient. In your case the UVB light worked wonderfully! Thank you for joining in with others who are sharing their experiences with treatments that are working or what has helped the most. Do you have light source at home or do you go to a clinic for treatments?