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Naliri and breathing difficulties

Pancreatic Cancer | Last Active: 15 hours ago | Replies (5)

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@gamaryanne

I am on it, but did not have lung issues coming into this other than a small lesion in my lower right lung. It was hit with SBRT just prior to starting Naliri .
My greatest side effect from Naliri has been fatigue on days3,4,5 and blood pressure drop. Lots of sleeping. Today is day 6 and I have a full day planned. I will ask others I know about the propensity to exacerbate existing lung issues and their results.

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Replies to "I am on it, but did not have lung issues coming into this other than a..."

Thank you gamaryanne. I can imagine, being how active you seem to be, that it’s a bit frustrating not to have the energy you’re used to, but at the same time I’ve read your posts how it has decreased your cancer antigen. I’m thankful for that because I’ve been there a few times now; at that crossroads of looking for the next best treatment and hoping that it works. I spoke with my radiation oncologist and he says it’s only small spot in my liver so we are going to try SBRT again. I’m not sure how the chemo will work. I still haven’t heard from my oncologist regarding the breathing side effects. Please keep your positive spirit gamaryanne as it’s an inspiration for all of us!