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Am I wrong to be concerned about my Stage 3a CKD?

Posted by quiltergirl2 @quiltergirl2, 22 hours ago

My eGFR took a drastic drop from 44 to 36. My doctor seems to be very blasé about. I asked if I needed a Nephrologist, or go on a renal diet, she just says “you’re not there yet”. WHERE?? My father lost a kidney to a renal cell carcinoma, and his sister had nephritis I don’t want to get to that point of losing a kidney or needing dialysis. Am I wrong to be worried? Any opinions out there?

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maggieinfp | @maggieinfp | 21 hours ago

You don’t mention your age but I would be concerned if under 60 and I recommend making an appointment with a nephrologist independently.

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quiltergirl2 | @quiltergirl2 | 19 hours ago

Oops, I’m 80. Maybe doctors don’t worry so much about old people, but I’m the sole caretake4 for my 85 year old husband..I can’t get sick!

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1 reply
amyb5 | @amyb5 | 19 hours ago
In reply to @quiltergirl2 "Oops, I’m 80. Maybe doctors don’t worry so much about old people, but I’m the sole..." + (show)
@quiltergirl2

Oops, I’m 80. Maybe doctors don’t worry so much about old people, but I’m the sole caretake4 for my 85 year old husband..I can’t get sick!

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It’s not that they don’t worry, it that our organs (like everything else 👎) show signs of wear with age. That is why the number expectations or parameters change, depending on age. The other thing they consider is how quickly your numbers are changing. For instance if it took 5 years to get where you are, the progression may be slow, therefore not as concerning as a rapid change.
It’s awful that you don’t feel cared about. I’m really sorry!

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1 reply
quiltergirl2 | @quiltergirl2 | 19 hours ago
In reply to @amyb5 "It’s not that they don’t worry, it that our organs (like everything else 👎) show signs..." + (show)
@amyb5

It’s not that they don’t worry, it that our organs (like everything else 👎) show signs of wear with age. That is why the number expectations or parameters change, depending on age. The other thing they consider is how quickly your numbers are changing. For instance if it took 5 years to get where you are, the progression may be slow, therefore not as concerning as a rapid change.
It’s awful that you don’t feel cared about. I’m really sorry!

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My doctor has ordered an ultrasound of my kidneys. But I still don’t understand why she wouldn’t give me any advice on some dietary changes that might help. She knows that I am stressing about my numbers. I guess I’m expecting too much. I may still ask for a nephrology referral.

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1 reply
amu45sin | @amu45sin | 14 hours ago

Get a different doctor NOW!! Be proactive and take care of YOU.
Your doctor sounds incompetent.

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talltxlady | @talltxlady | 3 hours ago
In reply to @quiltergirl2 "My doctor has ordered an ultrasound of my kidneys. But I still don’t understand why she..." + (show)
@quiltergirl2

My doctor has ordered an ultrasound of my kidneys. But I still don’t understand why she wouldn’t give me any advice on some dietary changes that might help. She knows that I am stressing about my numbers. I guess I’m expecting too much. I may still ask for a nephrology referral.

Jump to this post

If your insurance requires a referral to a nephrologist get one. If not, please find yourself a good one. I think it may help you to feel better after consulting with one. Best wishes for better health and days ahead.

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ichbindck | @ichbindck | 2 hours ago

I would definitely go to a nephrologist. I am 82 year old male at CKD stage 4 and my nephrologist is monitoring me every 6 months. My egfr is about 32 but fluctuates. I do not want to end up on dialysis. You want a specialist keeping a close eye on this.

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