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Any one with Neuroendocrine tumors getting the shot once a month?

Neuroendocrine Tumors (NETs) | Last Active: 3 days ago | Replies (111)
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@ruthybabybaby1

Hi
Extreme fatigue to the point where I can barely walk. I fall asleep mid sentence. Am extremely weak, My legs will not walk.
Very emotional and I am NOT a Cryer yet I cry all the time at the moment. Very Low mood. Main thing though is the tiredness not being able to go out to see my friends and not having any energy to do anything for 3 weeks out of the four.

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Replies to "Hi Extreme fatigue to the point where I can barely walk. I fall asleep mid sentence...."
Turkey, Volunteer Mentor | @tomrennie | 5 days ago

What have you done differently to help manage your challenges with fatigue and feeling weak? Have you met with a dietician to see if altering your diet can help? Have you met with a physical therapist to get some help with keeping your strength up?

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michellehcapouch | @michellehcapouch | 4 days ago

Same here the fatigue had me sleeping thru life last 2 1/2 plus years.
Reaction of everyone was sleep study are you sure your not depressed. Everyone is different t but keep digging and don’t stop. It is your quality of life and it is important.

For me ovaries out last fall including a NET tumor
Liver NETS stable. Sleep study showed more issues with restless legs than apnea. I’m still very positive even with the yawning so don’t think it’s depression. My calcium was normal. My PT said it has to be hormonal. Bone pain muscle pain severe fatigue. It’s gone. I had normocalcemic hyperthyroidism. I had two parathroid glands removed two weeks ago and life is night and day. I wake up at 8 or 9am not noon to 1 pm which has been my usual. I asked oncology team to send me to neuroendocrine referral for high PTH/ MEN1 thank goodness's. My husband said he noticed the difference right away. I was too tired to talk before. So keep searching our bodies are complex and w NETS everyone has a different path. Keep asking searching finding something somewhere will help.

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