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Hypertrophic Cardiomyopathy (HCM) | Last Active: May 13, 2017 | Replies (26)

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@vivian88

I live in Taiwan where there is a lack of info on HCM and lack of medical resources for HCM patients. However, Taiwan has a medical center which leads the world in arrhythmia treatment, especially for Afib. So I underwent a trans catheter RF ablation procedure in Taiwan before I ventured out to Mayo for apical myectomy. I had both Afib and VT at that time, and my EP was able to take care of both in a 4 hr procedure. I have been taking anti arrhythmia drug called Multaq (Dronedarone) and beta blocker Concor (bisoprolol), plus anti coagulant Xarelto, even to now (15 months post apical myectomy). Since my ablation procedure 2 years ago, I have not been found to have recurrence of Afib or VT. I do not have an ICD implanted and have never been put on Norpace.
@jhoffmanj, sorry I don't know if I am being helpful to you at all. Perhaps you can ask your Dr. to change your medication to Multaq (which, from what I understand, also has side effects, but it works on me perfectly)

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Replies to "I live in Taiwan where there is a lack of info on HCM and lack of..."

Thanks for your information. I appreciate it.