Sjogrens in my brain!

Posted by dianaislooking @dianaislooking, 1 day ago

I am wondering if anyone else has Chronic Sjogrens that has entered the Central nervous system and the brain.
I am getting more and more lesions affecting every part of my body. They at first misdiagnosed me with MS. Those medications they found caused major reactions and I was told I was allergic to them. 20 years later I was told it was Sjogrens not MS and started on Plaqunel. I am allergic to it as well and can only take half dose.
I am scheduled for yet another MRI (they decided to one every year) due to some more changes in vision and blood pressure which they can't explain. Sjogrens has already taken so much from me. I have at this time 7 large leisons and it it has spider webed across my brain. What next? Any insight or discussion from anyone out there who is in this boat?

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minnesota10 | @minnesota10 | 1 day ago

Do you have allergies.
I have a number of allergies. Milk, eggs and aluminum dye. Are the worse for me. Our meds are full of one or more of these.
I to have Sjogrens, I have had it for years. Write things down so you can track yourself.
Food, good day or bad days, pain levels and so on.
No, you have to be your own detective.
I wish you the very best

urbanjane | @urbanjane | 19 hours ago

I am also allergic to Plaquenil, I loved it for the 13 years I could take it.

dianaislooking | @dianaislooking | 4 hours ago

In reply to @urbanjane "I am also allergic to Plaquenil, I loved it for the 13 years I could take..." + (show)

I was allergic from day 1. My neurologist tried twice and after the second time he tried to put me on it said half dose is better than no dose. But the Sjogrens keeps getting worse.