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Orgovyx side effects and handling them

Posted by colm @colm, May 9 6:58am

Hi all I am new here and looking for some help. I have Prostate Cancer gleason 9 and starting Orgovyx today. I have tried to find the facts about side effects and how to help control or alleviate them. Read that some people have no side effects others have various ones. Would appreciate feedback from anyone who has been through the same scenario as I am about to. I have not started radiation treatment yet, I see the oncologst on the 27th, Thank you and I wish you all the very best.
Colm.

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robertov | @robertov | May 17 12:49pm

Orgovyx does suppress the cancer. I’ve been on it for 2 months+ and am preparing for a 3-month trip overseas. I will get treatment after that. I am at Gleason 4+4 and localized to the prostate, no metastasis.

I had little trouble with the Orgovyx. Fatigue, night sweats for just a couple of nights. No libido.

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1 reply
johnt0707 | @johnt0707 | May 17 1:34pm
In reply to @tjv1156 "On month two. Hot flashes getting way more frequent but some of that is due to..." + (show)
@tjv1156

On month two. Hot flashes getting way more frequent but some of that is due to the fact that it is getting hot, i think. Did you have surgery?
Are you on a 6 month regimen of Orgovyx?

Jump to this post

I'm on an eight month course of treatment. Four years ago I had 43 days of EBRT.

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colm | @colm | May 17 2:41pm
In reply to @robertov "Orgovyx does suppress the cancer. I’ve been on it for 2 months+ and am preparing for..." + (show)
@robertov

Orgovyx does suppress the cancer. I’ve been on it for 2 months+ and am preparing for a 3-month trip overseas. I will get treatment after that. I am at Gleason 4+4 and localized to the prostate, no metastasis.

I had little trouble with the Orgovyx. Fatigue, night sweats for just a couple of nights. No libido.

Jump to this post

Thanks for the input

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chippydoo | @chippydoo | May 18 9:20am
In reply to @mccannr "I also have Gleason 9, and I go to the Moffit Cancer Center. The radiation oncologist..." + (show)
@mccannr

I also have Gleason 9, and I go to the Moffit Cancer Center. The radiation oncologist suggested 6 mo. Orgovyx, and that plan was reinforced by an AI tool called "Aptera AI". I have completed HDbrachy and started SBTR. I have many SE from ADT but the worst is insomnia and daytime fatigue. I believe that exercise is the best therapy. My oncologist has forbidden pickleball and bike riding, which were my go to activities, so now I walk and swim on alternate days. It all falls under the "new normal".

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Why are they forbidding Pickleball and bike riding? I guess I could see bike riding after HD. Exercise has so helped me while on ADT. Some days it is tough to get moving but once I do, glad I did. 2 months left on 6 mos. of ADT and it is getting tougher to get moving.

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mccannr | @mccannr | May 18 1:19pm

I know, I keep asking them and they say no. Now my new SBRT oncologist is banning swimming

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