Connect
← Return to Waldenstrom macroglobulinemia (WM) 3 years: Might I be in remission?
Discussion
Waldenstrom macroglobulinemia (WM) 3 years: Might I be in remission?
Blood Cancers & Disorders | Last Active: Aug 21 4:01pm | Replies (52)Comment receiving replies
Thanks so much for the encouraging message. Are you also getting immunoglobulin infusions? Wondering how long both infusions will be needed. Also how long the steroids and brukinsa? Going to try to get some answers Monday when I see the oncologist. I wonder if we ever actually go into remission like other cancers. Hope you continue to improve!
Replies to "Thanks so much for the encouraging message. Are you also getting immunoglobulin infusions? Wondering how long..."
Connect
No immunoglobulin but been getting Rituximab for three years. My third bone marrow biopsy shows inactive in the bone marrow. My wife says I have chemo brain sometimes and work is more difficult, but I intend to retire at the end of the year. I think the differentiating thing with me is the anti-mag titers > 70000, which is rarer as my oncologist hasn't seen this before and such bad neuropathy. Still upbeat and feeling better!