← Return to Arteriovenous Malformation (AVM) Survivors and side effects

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@bobbiejo13

Sorry for my delay in responding. The neurologist visit didn’t really give us much info other than they felt she may have had a tad bit of swelling but nothing to cause the episode of migraines she was having. They put her on about a weeks worth of steroids and this seemed to stop the cycle of the migraines every 24 hours. They didn’t rule out a break-through seizure. They switched up her meds but ended up putting her back on Keppra because the side effects of the new meds were too much for her. For now we are in a waiting period to see if the radiation treatment worked and keeping our fingers crossed she has no more side effects during this waiting period. It can take up to 2 years we are told and that they sometime see brain swelling issues around 6 months after treatment in which they can treat with steroids. October is her 6 month mark. Fingers crossed. 🤞🏻

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Praying that the radiation treatments worked...with no side effects 🙏

Hi @bobbiejo13 Since my last conversation with you my headaches are now once a month. A member has recommended an herbal tea called “Shifa Turmeric Headache Relief Tea” by Shifa Naturals. It is a product available on Amazon or through their website. I haven’t tried it yet but will on my next onset. I am hoping for great results. I hope the Keppra offers help. I only took the medication for 2 months but with the side effects it was difficult to tell whether my symptoms were caused or exacerbated by the medication. I cringed when taking it. For me it was not a good drug. My doctor had agreed to wean me off the medication since I was a low risk for seizures. Wish you both well in finding answers. It is not easy. Toni