← Return to Arteriovenous Malformation (AVM) Survivors and side effects

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@colleenyoung

@bobbiejo13, I wanted to check back in with you. How was the appointment with the neurologist and surgeon? What did you learn? What are the next steps for your daughter?

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Sorry for my delay in responding. The neurologist visit didn’t really give us much info other than they felt she may have had a tad bit of swelling but nothing to cause the episode of migraines she was having. They put her on about a weeks worth of steroids and this seemed to stop the cycle of the migraines every 24 hours. They didn’t rule out a break-through seizure. They switched up her meds but ended up putting her back on Keppra because the side effects of the new meds were too much for her. For now we are in a waiting period to see if the radiation treatment worked and keeping our fingers crossed she has no more side effects during this waiting period. It can take up to 2 years we are told and that they sometime see brain swelling issues around 6 months after treatment in which they can treat with steroids. October is her 6 month mark. Fingers crossed. 🤞🏻