Hi @bobbiejo13 I am sorry your daughter is going through the migraines. Did she have a ruptured AVM? I don’t understand the radiation treatment for an AVM. Was something else discovered? The outcome of deficits depends on the location of the AVM, in other words, what part of the brain the AVM affected. With my ruptured AVM I did get the awful migraines for which I received a prescription for a pain medication but I opted for Tylenol. The headaches came 3 times per week initially but a bag of ice on my head offered better relief. I found myself using ice on my head in order to sleep. I was told the headaches were part of the healing process. I could feel when my brain was making new connections. It occurred more often in the beginning. I too have visual disturbances. I do not get the migraines as often as I used to, maybe once every 10 days, but I wonder if the migraines are due to my diplopia. What kind of visual disturbances is your daughter experiencing? I did not get much information from my neuro ophthalmologist for treatment. Not much information was provided by my medical team of doctors because not much is known since there are not many survivors. Basically, I was left on my own to learn as I go through my experiences. Everyone is different but I will gladly help in any way I can. I strongly urge you to question each physician with what the plan of treatment is and why. After all, they are not the ones experiencing the awful deficits. How can they understand when there is not much information out there?

@bobbiejo13, I wanted to check back in with you. How was the appointment with the neurologist and surgeon? What did you learn? What are the next steps for your daughter?