← Return to Arteriovenous Malformation (AVM) Survivors and side effects

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@johnbishop

@karla401, @aadgloria1401, @avmcbellar, @mockinbrd, @nusmal -- I was hoping to hear if you have had any change in your symptoms or treatments that you can share with other members. I ran across a recent study that I thought might be of interest to you.

Multimodality treatment of intracranial arteriovenous malformations in South Island, New Zealand
-- https://www.sciencedirect.com/science/article/abs/pii/S096758681931985X

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Replies to "@karla401, @aadgloria1401, @avmcbellar, @mockinbrd, @nusmal -- I was hoping to hear if you have had any..."

John, thank you for your inquiry. Very kind of you to ask all of us. A couple of days ago I was able to celebrate my one year anniversary since my craniotomy for my arteriovenous malformation. I believe I'm doing very well and able to do much of what I want. I see slow, steady, but continued progress in most areas. More than occasionally I wonder how others who have posted here are doing. I found the support from members and moderators very very helpful and important at various times. Again thanks to all. Would like to hear how others are doing.

Hi,@johnbishop thank you for asking. I had made a few dietary changes and saw an improvement. My neuropathy has become more manageable eating a Keto diet. I eat much less food now and try to consume foods less acidic. The bloating has decreased as well as the burning sensation in my stomach and esophagus. I feel much better. As for the Home Health physical therapy I will start in a month to learn to balance while walking on my lawn. I feel my eyesight has not improved because of the burning pain from the eye strain. I still see double. I feel it contributes to my motion sickness and headaches. I will see my neuro ophthalmologist in June. Turning my head quickly still causes dizziness. My ability to see well reflects on both simultaneously, turning my head and my eyesight. I am hoping a pair of glasses with a prism will help. My disability is all physical from my AVM rupture. I have no cognitive deficit. I have learned to use my left hand more often instead.