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Essential Thrombocythemia: Making treatment decisions
Blood Cancers & Disorders | Last Active: Jun 4 10:23am | Replies (259)Comment receiving replies
What is your dosage of HU? I was diagnosed on April 8, 2025. I am currently on 500 mg three times per week. My oncologist will be raising it to 4 times per week as I get adjusted to it. My negative side effects have been insomnia and brain fog. Anyone else experiencing this?
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I'm on 2 caps (1000mg) daily plus baby aspirin. I have bone pain which oncologist says unrelated. And fatigue, but I've never been a high energy person
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Have had ET for over 17 years. Now on HU 500 mg every night with 500 mg every second morning. Started 2nd January, 2025. After bone marrow test, found I am triple negative. Platelets were over 1000 slowly going down now 613. Saw hematologist last week, staying on above as they are going down, see him again 6 weeks. I am 73 so symptoms, fatigue have afternoon nap, 1 to 2 hours. Sleep is okay, brain fog possibly just getting older, way too much information being stored in brain, so it gets a bit clogged up sometimes. lol.