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Arteriovenous Malformation (AVM) Survivors and side effects

Stroke & Cerebrovascular Diseases | Last Active: Oct 19, 2023 | Replies (97)
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@kiarastrong

Hello, I stumbled across this forum desperately looking for information about AVM. A rare disease that attacked my 18 yr old daughter the morning of April 6, 2019. She is in NICU fighting for her life. I never heard about this abnormality of veins she was such a healthy child nothing out of the ordinary. May God Bless You all I'm hear reading your posts and I'm in tears. God Give us Strength and Power to see this through.

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Replies to "Hello, I stumbled across this forum desperately looking for information about AVM. A rare disease that..."
mockinbrd | @mockinbrd | Apr 14, 2019

I'm so pleased you were able to stumble across this forum. I think you will find genuine support here. I’m sure you will experience sincere hope for your daughters full recovery. I went to Mayo's in January 2019. Had a craniotomy and lengthy surgery after couple of angiograms and coils for stabilization. No one is promised 100% in life. But I think you can expect your health professionals to give you their best medical treatment they can give. You will find sincere efforts on your daughters behalf. Best of luck. Let me know if I can help.

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