← Return to Essential Thrombocythemia: Making treatment decisions

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@1995victoria

I'm much older. I was diagnosed almost 4 years ago. My father had elevated platelets which were thought to be from a symptom of aortic abdominal aneurysm, Then he had a stroke. When my platelets kept increasing for 3 years I went to hematologist who diagnosed ET. So I decided to take a chance on HU (hydroxyurea) with baby aspirin. My platelets have been nicely within normal range since I began medication, but I admit, I wonder what HU is doing to my body, but my fear of a stroke or heart attack keep me taking my capsules. I have blood tests every 3 months to make sure this blood cancer doesn't advance to a more risky one in the MPN group (myeloproliferative neoplasm). I try to keep up with advances in the MPN group of blood cancers

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Replies to "I'm much older. I was diagnosed almost 4 years ago. My father had elevated platelets which..."

What does your doctor say about stopping the HU? My platelets are 553 (I was just diagnosed this week) and am on the baby aspirin.

What is your dosage of HU? I was diagnosed on April 8, 2025. I am currently on 500 mg three times per week. My oncologist will be raising it to 4 times per week as I get adjusted to it. My negative side effects have been insomnia and brain fog. Anyone else experiencing this?