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@lkirnbauer

I’m going to say something that none of us want to hear…I met with the Long Covid Comprehensive Center at Northwestern in the city of Chicago a few months ago. I was told by the Chief of Neuro/Infectious Disease & Global Neurology that I would not be getting my taste or smell back since it’s been over a year! He actually said that to me! He said the olfactory nerves get damaged by Covid and don’t regenerate. Well then how come so many have gotten theirs back after 2 and 3 years? He is not God, he doesn’t know all the answers, as he said he’s still doing research, so how in the heck can he say that to me? Then, I saw my ENT a few days ago and she told me that she’s heard that after 1 month you won’t get it back. She’s just mean! She had no business telling me that unless she has concrete evidence to back it up. These doctors are all tired of hearing our stories, but that doesn’t mean that they should be telling us things that aren’t true either! We are all angry over what has happened to us and we all need to be cared for! How about just saying, “ we aren’t sure yet, but are working hard to find a solution”, how about that!

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Replies to "I’m going to say something that none of us want to hear…I met with the Long..."

You’re speaking the sad truth, @lkirnbauer. My experience with the medical profession since LC is that many practitioners are extremely averse to saying “I don’t know…”. Maybe they are taught in medical school that they have now learned everything. Leaves them stuck like the blind men and the elephant when they can’t understand what’s right in front of them. And then saying really unhelpful and painful stuff to us. To me this has been among the most frustrating (and surprising) parts of this experience… thankfully we’re here for each other.