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Arteriovenous Malformation (AVM) Survivors and side effects

Stroke & Cerebrovascular Diseases | Last Active: Oct 19, 2023 | Replies (97)
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@mockinbrd

Hello,
Thank you for members and moderator support. I posted a couple of times 1/31/19 and for the next few days. Recently, I have been lurking and trying to think about engaging. I would like you to know how very much this website has helped me even when I was not posting. I had a surgical fix to my avm that left me with some unexpected deficits. Posting is now more laborious. And I was away from home for well over a month. But, I like the positive and helpful attitude I find here. So this is my thank you to those who help and contribute to Mayo's website. (to name a couple- Kari Ulrich, avmbeller, Lisa Lucier to name a couple off the top of my head) . I hope to find more help with rehab and being positive is key for that.

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Replies to "Hello, Thank you for members and moderator support. I posted a couple of times 1/31/19 and..."
Kari Ulrich, Alumna Mentor | @kariulrich | Apr 8, 2019

@mockinbrd Thank you for lurking, thank you for posting and updating us on your AVM. I wish I could reach through the internet and give you a hug. I lurk too... sometimes that is the only strength I have. Sending my love and positive thoughts for healing. I will hold off on asking you questions, but when you have more strength would like to hear about your experience and deficits. I know it took all of your strength to post today. <3

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avmcbellar | @avmcbellar | Apr 8, 2019

You are welcomed! Thank you for posting your progress and keep being positive! I had several AVM repair surgeries but my last one, 2 years ago, left me with neuropathy on my left side. The burning sensation gets very painful but I still remain positive and try to find help. Has anyone had any positive experience with acupuncture for their AVM after repair or neuropathy? I was thinking of trying it next. I believe staying positive is the way to go to overcome the deficits. Recovery is a slow progress so hang in there! Glad to see you are doing well.

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