← Return to Arteriovenous Malformation (AVM) Survivors and side effects

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@mockinbrd

Dear avmbellar,
You are so right, it is good to catch the AVM before any rupture. Sounds like you have been through a lot. My journey is just beginning. Please note my post to Kari about being in a panic and stupor simultaneously. I hope a list of questions for me to ask can be developed. I know the plan is angiogram for glue to aneurysm then repeat with another angiogram. Then they plan on going in to remove the AVM a day later. They plan on removing part of my skull for that operation. Any experience with that? I don't even know what questions to ask for that. I must run. Thank goodness for this site to be able to express my concerns. Thank you.

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Replies to "Dear avmbellar, You are so right, it is good to catch the AVM before any rupture...."

Hi @mockinbrd. I think it’s good to keep occupied with your daily routines. Do as much as you can without the disruption. It will get your mind off any worries.
I also had the glue to fix the AVM. For the last 2 surgeries to repair my ruptured AVM, the medical team used my right femoral artery for access instead of removing my skull. I have a friend who also had an AVM without rupture. Her medical team also did an angiogram to repair her AVM but accessed it through her brachial artery instead. In the process, they discovered a brain tumor which they later removed through surgery via the skull. My friend is recovering very well and is currently doing outpatient therapy to improve balance issues.
Discuss your options for the surgery to decide what is the best avenue to take for you. My friend planned ahead and participated in outpatient therapy prior to the surgery which increased the strength. Comparing physical evaluations before and after the surgery helped tremendously with the treatments. Outpatient therapy knew exactly which deficits to target.