← Return to Arteriovenous Malformation (AVM) Survivors and side effects

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@avmcbellar

Hi @mockinbrd, welcome to the discussion group. Yes, treatment can be scarey but on the bright side your AVM was discovered before rupturing. Asking your neuro medical team questions of what to expect can help alleviate the worry. I think the aftermath of a rupture can be far more worrisome and recovery more difficult. I went through several operations to repair the AVM and a year after my last surgery I had a cerebral angiogram which revealed the AVM did not reform. My deficit from the last repair was the neuropathy on the left side of my body. What is scarey is not knowing expectations for recovery. What to do or not to do.

During my angiogram, I was alert for questions and guidance throughout the procedure. I did not experience any difficulty. I hope this helps.

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Replies to "Hi @mockinbrd, welcome to the discussion group. Yes, treatment can be scarey but on the bright..."

Dear avmbellar,
You are so right, it is good to catch the AVM before any rupture. Sounds like you have been through a lot. My journey is just beginning. Please note my post to Kari about being in a panic and stupor simultaneously. I hope a list of questions for me to ask can be developed. I know the plan is angiogram for glue to aneurysm then repeat with another angiogram. Then they plan on going in to remove the AVM a day later. They plan on removing part of my skull for that operation. Any experience with that? I don't even know what questions to ask for that. I must run. Thank goodness for this site to be able to express my concerns. Thank you.