Welcome @mockinbrd we are happy to have you here, you are not alone. I know you will get a lot of insight and support in this group. I have a small AVM that was discovered several years ago that found while monitoring for my vascular disease. It was very scary when I was told... honestly at times, even though mine is small and has not changed significantly there is always an underlying fear. I believe it is a good to know so you can prevent future problems. I look forward to what others have to say and know I am thinking of you.

Hi @mockinbrd, welcome to the discussion group. Yes, treatment can be scarey but on the bright side your AVM was discovered before rupturing. Asking your neuro medical team questions of what to expect can help alleviate the worry. I think the aftermath of a rupture can be far more worrisome and recovery more difficult. I went through several operations to repair the AVM and a year after my last surgery I had a cerebral angiogram which revealed the AVM did not reform. My deficit from the last repair was the neuropathy on the left side of my body. What is scarey is not knowing expectations for recovery. What to do or not to do.

During my angiogram, I was alert for questions and guidance throughout the procedure. I did not experience any difficulty. I hope this helps.