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Arteriovenous Malformation (AVM) Survivors and side effects

Stroke & Cerebrovascular Diseases | Last Active: Oct 19, 2023 | Replies (97)
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@susan1955

Is AVM the same as Osler-Weber-Rendu? (Also known as HHT)

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Replies to "Is AVM the same as Osler-Weber-Rendu? (Also known as HHT)"
stellgma | @stellgma | Apr 30, 2018

I haven’t heard that name used for my AVM-dura brain fistulas by the neurosurgeons-not sure.

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Colleen Young, Connect Director | @colleenyoung | May 12, 2018

Hi Susan, Untangling all the conditions and symptom, and their associated acronyms can be confusing.

Hereditary hemorrhagic telangiectasia (HHT), also known as Osler-Weber-Rendu disease, is a genetic disorder that affects blood vessels. It can cause bleeding in the digestive tract, anemia, increased risk of stroke and other symptoms.

With HHT some of the networks of blood vessels that join arteries to veins (capillaries) aren't correctly formed. In small blood vessels, these abnormalities are called telangiectases. When they occur in larger vessels, they're called arteriovenous malformations (AVMs). People who have HHT may have both kinds of malformations.

Here's more information about HHT from Mayo Clinic https://www.mayoclinic.org/diseases-conditions/hht/symptoms-causes/syc-20351135

AVMs can occur for a variety of reasons. Having HHT is one possible cause.
AVM is explained in this article https://www.mayoclinic.org/diseases-conditions/brain-avm/symptoms-causes/syc-20350260

I hope this helps.

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