GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Posted by dar9216 @dar9216, Jan 7, 2021

I was diagnosed a little over two years ago with GCA (Giant Cell Arteritis) and polymyalgia. Down to 1 mg of Prednisone/day, started at 60 mg. Anyone else have this combination?

Interested in more discussions like this? Go to the Polymyalgia Rheumatica (PMR) Support Group.

terrib2 | @terrib2 | 15 hours ago

TY! I’m so glad I found this support group. I hope you keep your weight up.

jasharum | @jasharum | 7 hours ago

What were your GCA symptoms? My rheumatologist doesn't think I have it but I'm not so sure.

jeff97 | @jeff97 | 6 hours ago

In reply to @jasharum "What were your GCA symptoms? My rheumatologist doesn't think I have it but I'm not so..." + (show)

I had low grade fever, night sweats, pain in my cheek bones, scalp tenderness, a lot of fatigue in my jaw muscles when I was chewing, and eventually temporary vision loss in one eye. I got treatment in time to save my vision.

jasharum | @jasharum | 5 hours ago

I also had low grade fever, night sweats, scalp tenderness, and frontal headaches. No jaw issues at all. A right temporal artery biopsy was negative.
I was diagnosed with PMR. Doc doesn't think I have GCA.
I'm tapering Prednisone, now at 5 mg. and woke with night sweats 2 nights ago. Frontal headache as well. My fear is they've missed something. I continue to have scalp tenderness but seems to be of no concern.