Hello @feroza and welcome to Mayo Connect.

I am sorry to hear that your daughter is at high risk for AVM. When treatment options contain risks, making the right decision becomes a dilemma, doesn't it?

I did find a website from the NIH that does provide some information on treatments for this disorder, https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3400489/.

Perhaps others in our Connect Community will respond with their experiences as well.

We look forward to supporting you during this decision making process, so please share with us.

If we may inquire, what were your daughter's symptoms that led to testing and this diagnosis? How is her health in general?

Teresa

Hi thanks for response she's had 3 convulsions over a period of 18 months that's when we did a mri followed by an angiogram she recently went on meds 4 the convulsions so that's in control. She's always tired and occasionally gets headaches.

Hello again @feroza

Have you had the opportunity to read the NIH article yet? It looks like a multidisciplinary approach is the best way to treat AVM.

Have you tried getting a second opinion yet? Perhaps that would give you more confidence to step out and make the right decision for your daughter's treatment.

Teresa

Hi there:) I just read this and was wondering how your daughter is doing. I found my AVM only after it had burst when I was 21. I would love to talk to you.