Hi @anamizzi123. While you’re waiting for members, who also have HHT to reply about any surgical procedures they had and how that was handled, it might be a good idea to have a consultation with a surgeon. They may have dealt with this situation before and have protocol to follow.

There is a website I found which might be helpful if you need a second opinion. Cure HHT offers a list for Centers of Excellence, in several states, which specialize in Hereditary Hemorrhagic Telangiectasia. These facilities have a deeper bench of experienced specialists.
Cure HHT
https://directory.curehht.org/hht-centers
I can understand your concern, considering the potential for any complications. So it would be good to make sure all the doctors are on the same page in the decision making process. Have you and your husband spoken with his hematologist or a surgeon about the hernia surgery?